The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.
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6.2/10
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7.2/10
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8.5/10
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7.1/10
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7.2/10
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6.8/10
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5.8/10
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7.1/10
I Love You I Miss You I Hope I See You Before I Die
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8/10
